National Directory

Name. (Click on the organisation name for more details)	Website
Carers Federation	www.carersfederation.co.uk
The Carers Trust	www.carers.org
Carers UK	www.carersuk.org
Chill4UsCarers	www.chill4uscarers.co.uk

Name. (Click on the organisation name for more details)	Website
Bipolar UK	www.bipolaruk.org
Hearing Voices	www.hearing-voices.org
Making Space	www.makingspace.co.uk
Mind	www.mind.org.uk
Rethink	www.rethink.org
Sane	www.sane.org.uk
Young Minds	www.youngminds.org.uk

Name. (Click on the organisation name for more details)	Website
Anxiety UK	www.anxietyuk.org.uk
Big White Wall	www.bigwhitewall.com
British Psychology Society	www.bps.org.uk
Centre for Mental Health	www.centreformentalhealth.org.uk
Chinese Mental Health Association	www.cmha.org.uk
The Cochrane Library	www.cochrane.org
Family Action	www.family-action.org.uk
FRANK	www.talktofrank.com
Institute of Psychiatry	www.kcl.ac.uk/ioppn/index.aspx
Internet Mental Health	www.mentalhealth.com
McPin Foundation	www.mcpin.org
The Mental Health Foundation	www.mentalhealth.org.uk
National Collaborating Centre for Mental Health	www.rcpsych.ac.uk/improving-care/nccmh
NHS Choices	www.nhs.uk/pages/home.aspx
No Panic	www.nopanic.org.uk/
Patient Advice and Liaison Service (PALS)	www.nhs.uk/chq/Pages/1082.aspx?CategoryID=68&SubCategoryID=153
Royal College of Psychiatry	www.rcpsych.ac.uk
Samaritans	www.samaritans.org
Together: Working for Wellbeing	www.together-uk.org
Turning Point	www.turning-point.co.uk
UK Advocacy Network	www.u-kan.co.uk

Name. (Click on the organisation name for more details)	Website
Centre for Addiction and Mental Health (CAMH) – Canada	www.camh.ca/
Depression and Bipolar Support Alliance (DBSA)	www.dbsalliance.org
National Alliance of the Mentally Ill – USA	www.nami.org
Schizophrenia.com – USA	www.schizophrenia.com

Mental Health Concern

http://www.mentalhealthconcern.org/

enquiries@concerngroup.org

0191 217 0377

Buttress House, 36 Brenkley Way, Seaton Burn, Newcastle upon Tyne, Tyne and Wear, NE13 6DS

Amaze - EIS

https://www.cumbriapartnership.nhs.uk/our-services/mental-health/our-mental-health-services/amaze

A-Maze@cumbria.nhs.uk

Cumbria Partnership NHS Foundation Trust, Voreda, Portland Place, Penrith, Cumbria, CA11 7QQ

Greater Manchester West Mental Health NHS Foundation Trust

https://www.gmw.nhs.uk/

0161 773 9121

Greater Manchester West Mental Health NHS Foundation Trust, Trust Headquarters, Bury New Road, Prestwich, Manchester, M25 3BL

Lancashire Early Intervention Service

https://www.lancashirecare.nhs.uk/Hope-Health-Recovery

0500 639 000

The Mount, Whalley Road, Accrington, BB5 1AR

NCompass

http://ncompassnorthwest.co.uk

0345 0138 208 / 01253 407473

Head Office, 3 Errigal House, Avroe Crescent, Blackpool Business Park, Blackpool, Lancashire.

Wellbeing & Mental Health Helpline for the people of Lancashire

https://www.lancashirecare.nhs.uk/Mental-Health-Helpline

Helpline: 0800 915 4640

Greater Manchester West Mental Health NHS Foundation Trust, Trust Headquarters, Bury New Road, Prestwich, Manchester, M25 3BL

Leeds Survivor Led Crisis Service

http://www.lslcs.org.uk/

info@lslcs.org.uk

0113 260 9328

Dial House, 12 Chapel Street, Halton, Leeds, LS15 7RW

Living with Psychiatric Medication

https://livingwithpsychiatricmedication.co.uk/

info@networkforchange.org.uk

0116 247 0335

Network for Change, 150-152 London Road, Leicester, LE2 1ND

Samaritans

Samaritans provides confidential non-judgemental emotional support, 24 hours a day for people who are experiencing feelings of distress or despair, including those which could lead to suicide. It has branches across the UK supporting people face to face, by telephone, email and letter.

Phone number: 116 123

Young Minds

Young Minds is a national UK charity committed to improving the mental health and emotional well-being of all children and young people and empowering their parents and relatives. They have a specific section of their website for parents and a dedicated helpline for parents.

Web: www.youngminds.org.uk

Young person support: If you need urgent help text YM to 85258

ParentLine: 0808 802 5544

Suite 11, Baden Place, Crosby Row, London, SE1 1YW

Rethink

Rethink is a national mental health charity supporting everyone affected by severe mental illness to recover a better quality of life. They provide services (including respite breaks for relatives and support workers), have a network of over 150 local support groups many run by relatives and run campaigns. The Rethink website has useful information for relatives, including sibling relatives. A good starting place is the ‘how can we help section’

www.rethink.org/living_with_mental_illness/caring/index.html

You can find out about local groups through the Rethink website home page.

Web: www.rethink.org

Email: info@rethink.org

Phone: 0121522700789

89 Albert Embankment, London SE1 7TP

Hearing Voices

The Hearing Voices Network offers information and support to people who hear voices and those who support them. They have a network of over 180 groups throughout the UK and through their website you can find details of your nearest support group.

Web: http://www.hearing-voices.org

Email: info@hearing-voices.org

Phone: 01142 718210

National Hearing Voices Network, 86-90 Paul Street, London, EC2A 4NE

Chill4UsCarers

Chill4us Carers is a social network community for carers and provides information, the ability to chat with other carers. They are a peer support group offering carer resources and have experience of the isolation felt by family carers, the struggle with finding grants, money and the general difficulty of finding help for carers.

Web: chill4uscarers.co.uk/

Email: support@chill4us.com

Phone: 01603 340193

Carers UK

Carers UK is the voice of carers. Most of their resources are generic e.g. guide to direct payments, work and caring. They have a number of discussion forums including one for mental ill health and up to date policy and campaign information on issues affecting relatives.

Web: www.carersuk.org//

Email: advice@carersuk.org

Phone: 02073784999

20 Great Dover Street, London SE1 4LX

The Carers Trust

The Carers Trust is one the largest providers of comprehensive relatives support services in the UK. Through its unique network of 144 independently managed Carers’ Centres, 85 young relatives services and interactive websites including discussion boards. There is useful mental health specific information on the site – use their ‘Help for carers’ search facility typing in ‘mental health’ to help you navigate.

Web: www.carers.org/

Email: support@carers.org / info@carers.org

Phone: 0300 772 9600

Carers Trust , Unit 101, 164–180 Union Street,London SE1 0LH

Carers Federation

The Carers Federation was established in 1992 and is a small local organisation supporting relatives in the North of England.

England: www.carersfederation.co.uk/

Email: info@carersfederation.co.uk

Phone: 01159 629 310

Christopher Cargill House, 21-23 Pelham Road, Nottingham, NG5 1AP

Wellbeing includes:

personal dignity
physical / mental health / emotional well-being
protection from abuse and neglect
control over day-to-day life inc nature of care provided
participation in work, education, training or recreation
social and economic well-being
domestic, family and personal relationships
suitability of living accommodation
the adult’s contribution to society

Outcomes include:

managing and maintaining nutrition
maintaining personal hygiene
managing toilet needs
being appropriately clothed
being able to make use of the adult’s home safely
maintaining a habitable home environment
developing and maintaining family or other personal relationships
accessing and engaging in work, training, education or volunteering
making use of necessary facilities or services in the local community including public transport, and recreational facilities or services
carrying out any caring responsibilities the adult has for a child

Bipolar UK

Bipolar UK is a national user-led organisation and registered charity for people whose lives are affected by bipolar disorder with branches in England and Wales. There is specific information for relatives on the site, use their search facility typing in ‘carer’ to help you navigate. They also have a network of self-help groups and an e-community online discussion resource.

Web: http://www.bipolaruk.org/

Email: info@bipolaruk.org

Phone: 0333 323 3880

Bipolar UK, 11 Belgrave Road, London, SW1V 1RB

Making Space

Making Space provides a range of services for relatives including respite breaks and support. They operate in the North West, Central England and London/South East of England

Web: www.makingspace.co.uk

Email: enquiries@makingspace.co.uk

Phone: 01925 571680

Making Space – Head Office, Lyne House, 46 Allen Street, Warrington, Cheshire WA2 7JB

Mind

Mind is a national mental health charity that provides information and support for people affected by mental health difficulties. The website provides a great deal of useful information about mental health and the support available to people experiencing mental distress and their families. A useful starting point is the ‘how can we help section’ to find contact details for their legal service, information line, publications, information leaflets. The local mind organisations located across England also provide specific services to relatives – contact your local branch to find out more:

Web: www.mind.org.uk/help/mind_in_your_area http://www.mind.org.uk/

Email: contact@mind.org.uk

Phone: 02085 192122

15-19 Broadway, Stratford, London E15 4BQ

Sane

Sane campaigns to raise awareness, undertakes research and provides help and information to those experiencing mental health problems, their families and relatives. A key point of contact and support is the helpline: 03003047000

Web: www.sane.org.uk

Email: info@sane.org.uk

Phone: 02038051790

St. Mark’s Studios, 14 Chillingworth Road, Islington, London, N7 8QJ

Job Centre Plus

Part of the Department for Work and Pensions, JobCentre Plus provides information on most benefits for people of working age and information on employment and schemes for getting into work.

NICE Guidelines

The National Institute for Health and Clinical Effectiveness (NICE) has made some recommendations about the treatments you and your relative should be offered. These are based on a careful review of all the available evidence by a panel of clinical experts, service users and relatives.

NHS Choices (Carer information)

Information on help for relatives, including benefits, work issues and your rights as a relative.

Direct Gov.UK

The official UK government website for citizens, including information about disability rights and support in the UK

The Department for Work and Pensions

Government information on benefits, pensions and work related issues.

The Department of Health

Government information on health and social care services, policies and strategies.

Care Quality Commission

Information about the Care Quality Commission and the Mental Health Act.

Schizophrenia.com – USA

Started in 1995, it is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia co-ordinated in the USA. It has an extensive list of books about schizophrenia including material for children, siblings, parents and partners as well as personal accounts from service users and relatives.Started in 1995, it is a leading non-profit web community dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia co-ordinated in the USA. It has an extensive list of books about schizophrenia including material for children, siblings, parents and partners as well as personal accounts from service users and relatives.

National Alliance of the Mentally Ill – USA

Includes extensive information on mental health conditions and treatments. It is an American site so some details may be different to the UK.

Depression and Bipolar Support Alliance (DBSA)

The DBSA is a leading American peer-directed organisation which focuses on depression and bipolar disorder and provides resources and empowering services.

Centre for Addiction and Mental Health (CAMH) – Canada

The site has a range of information about psychosis including a report called: ‘Women and Psychosis: A guide for women and their families’.

UK Advocacy Network

The organisation actively promotes user empowerment and user involvement in the choosing, monitoring and running of mental health services.

Turning Point

Provides services for people with complex needs, including those affected by drug and alcohol misuse and mental illness.

Together: Working for Wellbeing

Together’s focus is to support people who have complex and enduring mental health issues, most of whom are referred to our services by other professionals.

Patient Advice and Liaison Service (PALS)

PALS are an impartial and confidential service which can provide you with information about the NHS and help you with any other health-related enquiry, help resolve concerns or problems when you are using the NHS, provide information about the NHS

complaints procedure and how to get independent help if you decide you may want to make a complaint, and inform you about how you can get more involved in your own healthcare and the NHS locally. Your local NHS Trust will have its own PALS service.

Royal College of Psychiatry

The Royal College of Psychiatrists is the professional and educational body for psychiatrists in the United Kingdom and the Republic of Ireland. They produce a range of information leaflets that can be downloaded from their website such as debt, carers, schizophrenia, spirituality and mental health as well as podcasts. They ran a campaign a few years ago with the Princess Royal Trust for Carers producing specific information for relatives about information sharing and patient confidentiality.

No Panic

Information and support for people affected by anxiety, phobias, obsessive compulsive disorder or tranquilliser withdrawal.

NHS Choices

The NHS Choices website offers in-depth information about psychosis and bipolar disorder, including symptoms, causes, diagnosis, useful questions you may want to ask of mental health professionals with answers. There are also ‘real stories’ on-line.

National Collaborating Centre for Mental Health

Offers accessible information on NICE mental health guidelines.

The Mental Health Foundation

The Mental Health Foundation provides information, carries out research, campaigns and works to improve the services for anyone affected by mental health problems, whatever their age and wherever they live. The interactive website has bulletin boards and forums, publications and information.

McPin Foundation

The McPin Foundation aims to transform mental health research by putting the lived experience of people affected by mental health problems at the heart of research methods and the research agenda.

Internet Mental Health

Information on mental health conditions, diagnoses, treatments and research.

Institute of Psychiatry

Provides information on mental health as well as information on research projects at the institute. It has developed a specific web resource for relatives where summaries of published research are held, interviews with professionals and relatives can be found and links to other resources sign posted.

FRANK

Free confidential drugs advice.

The phone number is 0300 123 6600

For those with a hearing impairment, you can textphone FRANK on 0300 123 1099

Family Action

A safe online community of people who are anxious, down or not coping to support and help each other by sharing what’s troubling them, guided by trained professionals.

The Cochrane Library

Provides literature reviews of health related research including reviews into studies of schizophrenia. A project to produce lay summaries of all the schizophrenia studies is underway. They are also found on this site.

Chinese Mental Health Association

Specializes in providing community based mental health assistance and support to the ever growing Chinese community in the United Kingdom.

Centre for Mental Health

The Centre for Mental Health carries out research, policy work and analysis to improve practice and influence policy in mental health as well as public services. Their priorities are mental health care in the criminal justice system and employment and mental health. They publish reports on-line including information on recovery

British Psychology Society

The BPS are the representative body for psychology and psychologists in the UK. It has a publications section on its website including links to all the NICE (National Institute for Health and Clinical Excellence) guidelines that define best practice treatments and supports for mental health services users and their families.

Big White Wall

A safe online community of people who are anxious, down or not coping to support and help each other by sharing what’s troubling them, guided by trained professionals.

Anxiety UK

Anxiety UK works to relieve and support those living with anxiety disorders by providing information, support and understanding via an extensive range of services. They work to improve services for those living with anxiety disorders, and also campaign to raise awareness of anxiety disorders.

National Directory

General Carer Support

Mental Health Support

Mental Health (& Research) Organisations

Overseas Organisations

Wellbeing includes:

Outcomes include: